Rare Disorders Society (Singapore)
Rare Disorders Society (Singapore), a.k.a RDSS, is a non-profit organization established in 2011. Oursociety is initiated by parents with children suffering from LSD (lysosomal storage disorder) to advocate for patients’ right and create awareness about various life threatening rare diseases (RD).
RD patients form a minority of our society and receive little or no help or attention. Ouracknowledgement and investment can make significant changes to RD patients’ quality of life. With timely and accurate diagnosis and intervention, they too can contribute positively towards our society.
We alone cannot take care of our children forever, but a loving society and a well-established system can. So, join us to make a better future for RD children. Because of you, love is so unreserved.
Newsflash
We like to thank Lianhe Wanbao for featuring rare disease on 15/4/12.
Click to read
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RDSS celebrated RARE DISEASE DAY 2012 on 25/02/2012 at Raindrops Cafe @ *SCAPE.
Check out photographs at our facebook page.
There was also an article in Straits Times on Saturday, 04/03/12.
Click to read
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RDSS will offically launch our "Power for Life" campagin on 01/02/2012.
Click here to know more.
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On behalf of the family of Zecia, we would like to thank Genzyme for your kind support! We hope you will continue to "Put Patients First".
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RDSS would like to thank Mr Gan Kim Yong and Mr Seng Han Thong for their support in creating awareness and helping rare disorder patients.
