Rare disorders including those of genetic origin, are life threatening, chronically debilitating diseases which are of such low prevalence that special combined efforts are needed to address them.
If you’re a parent with a child diagnosed with a Rare Disease and would like to register your child with us, please download this form and fill it up. You may send it to the mailing address on the form.
Please attach your child’s diagnosis report with the registration form and mail them to us.
Kindly note that RDSS only accept children diagnosed with rare diseases to be our members.