Rare Disease Day 2017
Rare Disease Day 2017: Balik Kampung – Back to basics
Date: 26 Feb 2017
Time: 9.30am – 12.30pm
Location: Enabling Village, Hall 1 & 2, 20 Lengkok Bahru, Singapore 159053
Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness among the general public and decision-makers about rare diseases and their impact on patients′ lives. The campaign targets primarily the general public and also seeks to raise awareness amongst policy makers, public authorities, industry representatives, researchers, health professionals and anyone who has a genuine interest in rare diseases.
Rare Disease Day 2017: Balik Kampung is organised by Rare Disorders Society (Singapore). At the event, Rainbow Across Borders will present findings from Hearts, Hopes and Aims: A Singapore Rare Disease Impact Study 2016, a comprehensive study to better understand the needs of rare disease patients and their caregivers in Singapore, with the intention to identify areas for community involvement and humanitarian solutions. This study will provide insights into the lives of the patients in Singapore, particularly their challenges and dreams.
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