Rare disease fund needs S$200m at launch

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Chloe Mah’s treatment for a rare genetic condition that affects her muscles costs S$40,000 a month before subsidies kick in. Estimating that there are 600 to 700 children with rare diseases, patient advocacy group Rainbow Across Borders¬†says the rare disease¬†fund that the Government is looking to set up needs S$200 million at the start for it to be sustainable.
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