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Useful Resources

Some public and private resources in Singapore that offer emotional, medical, financial and educational support to rare disease patients and their families are listed here.

RDSS will continue to make updates on the section to provide useful resources on the parents and caregivers.

Patient Support Groups

  • Rare Disorders Society Singapore (RDSS)
  • RDSS is devoted to improving the life of families and patients with rare diseases by raising public awareness on rare diseases, organising parent support group sessions, providing financial support on sustainable treatment methods, and participating in rare diseases conferences.
  • http://www.rdss.org.sg/
  • Serving People with Disabilities
  • Serving People with Disabilities provides day care, social service support, rehabilitation, education, and employment training for people with special needs.
    http://www.spd.org.sg/
  • Asian Women’s Welfare Association (AWWA)
  • AWWA provides community-based programmes for people with special needs across all ages. The AWWA Centre for Caregivers runs mentoring programmes as well as counselling sessions for caregivers.
    https://www.awwa.org.sg/
  • Muscular Dystrophy Association Singapore  
  • YWCA Of Singapore
  • Club Rainbow

Medical Resources

Public

  • KK Women’s and Children’s Hospital
  • The NENS Laboratory provides screening for genetic defects causing metabolic disorders in babies born in Singapore.
  • The multidisciplinary team at Psychological Medicine may help meet the emotional needs of your child.
  • The Health Services Authority Clinical Trials Register
  • You can find a list of all the active clinical trials in Singapore in this register.

http://www.hsa.gov.sg/content/hsa/en/health_products_regulation/clinical_trials/overview/clinical_trials_register.html

Private

  • Collaborative Care Notebook from Utah Family Voices
  • You may use this care notebook as a template to keep track of your child’s medical conditions.

http://www.utahfamilyvoices.org/links/

  • Assistive Device Loan Library
  • This library allows people with disabilities to rent devices and offers case-by-case subsidies.

http://www.spd.org.sg/

Financial Assistance

Public

Private

  • Rare Disorders Society (Singapore) Fund
  • The fund offers financial assistance through the Medical Intervention Support Programme, the Power For Life Programme, and the Consumable Support Scheme.

http://www.rdss.org.sg/causes/

  • Private Intervention Subsidies
  • These subsidised private intervention programmes help children with disabilities develop their communication, physical and intellectual skills.

https://www.sgenable.sg/

Educational Resources

Public

  • Services for Children with Special Needs
  • These early intervention programmes and support services include Early Intervention Programme for Infants and Children, the Integrated Child Care Programme, and Development Support & Learning Support Programme.
  • https://www.sgenable.sg/

 

Private

  • List of Private Special Education Schools
  • https://www.actualyse.com/
  • Beautiful Mind Charity
  • Beautiful Mind Charity provides musical training for children with disabilities and organises mini-concerts at schools, nursing homes and hospitals.

https://www.bmcsg.org/

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