RDSS ‘Love Is Not Rare’ Music Video

‘Love Is Not Rare’ is the tagline of the Rare Disorders Society Singapore (RDSS). While our children’s conditions are rare, our love for them isn’t rare. It is in everything we do. The daily heavy-lifting. The medical procedures we carry out regularly that may cause our child discomfort. The many nights we camp by their […]

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Ucare’s May Day 2018 project

Together with Singapore Port Workers Union (SPWU) and Port Officers’ Union (POU), they will be blessing RDSS beneficiaries with a goodie box which will be kindly delivered by volunteers right to their door step! On behalf of all RDSS beneficiaries and families, we give our deepest appreciation to SPWU and POU for always having us […]

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Rare disease fund needs S$200m at launch

Chloe Mah’s treatment for a rare genetic condition that affects her muscles costs S$40,000 a month before subsidies kick in. Estimating that there are 600 to 700 children with rare diseases, patient advocacy group Rainbow Across Borders says the rare disease fund that the Government is looking to set up needs S$200 million at the start for […]

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Uncanned Art silent auction

Thank you @thevagabondclub and @uncanned.art for organising unique – an art exhibition silent auction fundraiser for RDSS (Rare Disorders Society of Singapore). It was a great success and we look forward to more exhibitions! @ The Vagabond Club, Singapore, a Tribute Portfolio Hotel. A total of $3,000 was raised for RDSS this year. Thank you […]

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Know Me iROO

On 28 February 2018, iROO Singapore has officially launched their 5 years Corporate and Social Responsibility Campaign with Rare Disorders Society (Singapore) as the adopted charity. Their aim is to help raise awareness and educate the public on acceptance and empathy for our children who have a rare condition. Their first campaign surrounds on the […]

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Rare Disease Day 2018

In honor of and Rare Disease Day on February 28th, Illumina participated in a global company wide fundraising initiative to support RDSS along with Unique – Understanding Chromosome Disorders in the UK, Global Genes and Rare Voices in Australia. During the week employees were encouraged to post photographs of themselves and their team members wearing […]

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