Love Is Not Rare

Rare disorders including those of genetic origin, are life threatening, chronically debilitating diseases which are of such low prevalence that special combined efforts are needed to address them.

If you’re a parent with a child with Rare Diseases and would like to join RDSS, download the form and fill it up. You may send it to the mailing address on the form or alternatively, you could also scan the form and email it to us at

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