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Celebrate Life 2019 Party
01/03/2020Every 2 years RDSS will host a year end party to celebrate with our beneficiaries and their families of a joyful and eventful year. Our beneficiaries fought hard to live another day and we know the challenges that the families have to go through. Everyone of us live a positive life and as parents/caregivers, we […]
Posted In: Our News -
Rare Disease Fund
03/07/2019Press Release by MOH: The Ministry of Health (MOH) and the SingHealth Fund have jointly established the Rare Disease Fund (RDF), a charity fund that combines community donations and government matching contribution to support Singapore Citizens with specific rare diseases who require treatment with high-cost medicines. Rare Diseases 2. Rare diseases are conditions that […]
Posted In: Our News -
RDSS Sibling’s Friendship Day 2019
12/06/2019On 9th June 2019, RDSS hosted it’s very first Sibling’s Friendship Day 2019 at HomeTeamNS Laser Quest Centre. 27 children aged between 7 to 16 attended the event this time. During the event, the children also participated in an art therapy session leaded by Ms Amanda from Art For Good. This event was organised by […]
Posted In: Our News
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01/03/2014Rare Disease Day 2014
This is the 3rd year Singapore celebrating Rare Disease Day 2014. Come join us to show your support for children living with rare diseases.
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18/05/2014Cold Storage Run 2014
Join us on 18th May 2014 to support children running for RDSS. We need volunteers to help give out flyers and share about RDSS.
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22/06/2014Income & wealth accumulation workshop
“How to invest in Reits and ETF for income and wealth accumulation” workshop will be held soon. Date: 22/06/14, Time: 1pm-6pm, Place: 100A Eu Tong Sen Street #04-11 Pearls Centre Office Podium Singapore 059813
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27/07/2014WOW Day Tea Party 2014
A group of 26 individuals coming together as LP125 to give, love and serve the families of Rare Disorder Society (Singapore)
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21/11/2014RDSS Family Retreat 2014 – Nautical Fantasy
RDSS family retreat – Nautical Fantasy will be a 4D3N trip to Port Klang on board Royal Caribbean’s Mariner of the Seas cruise ship from 21 to 24 November 2014.
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03/01/2015RDSS Educational Programme 2015 – Ocean Dreams
On 3rd January 2015, 27 families will be participating in RDSS Educational Programme at S.E.A Aquarium
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28/02/2015Rare Disease Day 2015
RDSS is celebrating Rare Disease Day 2015 on 28/02/215 at Bishan Active Park.
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12/03/2015Rare Disease Asia Conference 2015
Save the date – 12th March 2015
Don’t miss the first Rare Disease Asia Conference 2015 in Singapore. -
27/06/2015RDSS Dinner & Durians Party
During June’s holiday, RDSS is organising a networking party for RDSS families on 27th June 2015. We have 19 families signing up to attend this party and we hope everyone will enjoy themselves.
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23/11/2015Colour For Courage Party
On 22th November, a volunteer group called Colour Fighters is organising a lunch party for RDSS beneficiaries. During the event, there will be an award presentation to this year’s caregiver award recipients.
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26/12/2015Christmas is Christmas Party
RDSS would like to thank donors and sponsors for this year Christmas Party. More than 60 families attending this party on 26th December at Orchard Hotel.
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27/02/2016Care Connection medical seminar “Managing Rare Genetic Disorders”
CLUB RAINBOW (SINGAPORE) presents a new initiative under Care Connection SEMINAR ON “MANAGING RARE GENETIC DISORDERS” ABOUT THE WORKSHOP Critical information on rare genetic disorders Symptoms and distress signals Options to treat/control illness and other life-saving alternatives Monitoring and home-administered methods to improve conditions This seminar is open to all caregivers and families, and members […]
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28/02/2016Rare Disease Day 2016 “Together in One Voice”
RDSS is hosting a closed door event to mark this year’s Rare Disease Day 2016.
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17/06/2016RDSS Mummies’ Respite event
An Evening of Art, Wine and Friendship – An RDSS Mummies’ Respite event Date: 17 June 2016 Time: 7pm – 9:30pm A: 200 Jalan Sultan, #09-03 Textile Centre, Singapore 199018 Programme: Create art, paint, while sipping a glass of wine and enjoy light refreshments together with fellow mummies for a night of much deserved respite. […]
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25/02/2017Fundraiser by igKNIGHT
Date: 25th February 2017, Saturday Time: 1630 – 1800 (doors will open promptly at 1600) Venue: The Republic Cultural Centre Studio, Level 2 Republic Polytechnic, 9 Woodlands Avenue 9, Singapore 738964 Acts include: 1. Performance by RDSS in memory of Teo Peishan ? 2. Defenestration – Year 4 SN Dancers ? 3. Nicole Lim & […]
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26/02/2017Rare Disease Day 2017
Rare Disease Day 2017: Balik Kampung – Back to basics Date: 26 Feb 2017 Time: 9.30am – 12.30pm Location: Enabling Village, Hall 1 & 2, 20 Lengkok Bahru, Singapore 159053 Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness among […]
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17/03/2019‘Racefor 7’ 2019 Charity Run
‘Race for 7’ 2019 is organised by Rare Disorders Society (Singapore) to help raise funds and awareness for rare disease patients in Singapore.
