About us
We live with a hope
At RDSS, we believe in fostering hope for individuals with rare diseases, envisioning a future where they can lead fulfilling lives. While waiting for advancements, we are dedicated to improving their quality of life. Our collaborations with stakeholders aim to ensure individuals with rare diseases receive the necessary attention within our ecosystem.
Join us in amplifying their voices and making a difference! Be a beacon of hope.
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Empower Lives
Every small amount can make a significant impact in the lives of those with rare disorders. Your generous donation today can create a world of difference for someone battling a rare condition, offering them hope, support, and a brighter tomorrow. By contributing to the Rare Disorders Society Singapore (RDSS), you become an essential part of a compassionate community working tirelessly to improve the lives of individuals with rare disorders and their families. Your donation will enable RDSS to provide emotional support, and educational resources, empowering these brave individuals to overcome challenges and thrive.ย Donate now and be a beacon of hope for the rare disorder community. Together, we can create a world where every person with a rare disorder is supported and cherished.
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Testimonial
About Our Work
Meet Patricia & Kenneth
RDSS is a family-style non-profit organisation. We build RDSS to serves as a community, another family, where people living with rare disorders, and their family can come together for companionship and support. RDSS offers a platform for caregivers to share their experiences and network with each other.
Meet Jasmine & Sarah
RDSS is more than just a place I have received support and assistance from, but also one that empowered me to become a better caregiver. Each of us is like a family to one another, because we can understand the challenges and also the joy that come with every victory that our child has battled. Love is not Rare and we are not alone in this journey.
Meet Amanda & Amelia
As a sibling, there are many things we have to learn beyond our age. RDSS siblings programme showed me that there are many other siblings out there who is facing the same struggles as me and its been an honour to journey alongside with them. So now it's my turn to contribute back and RDSS has provided me a platform to do so.
Meet Francesca
Thank you RDSS for letting me have my art therapy with Art for Good. I like teacher Amanda very much and I hope to continue my lessons with her. I never know I can draw so well and I am so happy that I can express myself through my drawing. My daddy and mummy are very proud of me! When I grow up, I want to become an artist!
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Latest News
Some of the Recent Stories
If you are XLH patients or someone living with XLH, please scan the QR code to register for this event.
Early Bird Registration starts on 17 November! 10% discount on ticket prices for all categories. Early bird lucky draw vouchers, worth
RDSS has successfully received our IPC status in December 2022. Donors that made a donations to our Charity will be
RDSS hosted our first physical event since Covid pandemic started in 2020. Our beneficiaries and their families enjoyed a joyful
Carry Hope 2023 7.7KMย Walk-A-Jog Challenge Guest of Honour: Mr Ong Ye Kung Minister For Health of Singapore See you on
RDSS is pleased to announce Citrix Systems has made a generous donations to support our home-based therapy scheme. Up to
๐ฆ๐ฝ๐ฒ๐ฐ๐ถ๐ฎ๐น ๐๐ต๐ถ๐น๐ฑ - ๐ฎ ๐๐ฒ๐น๐ณ-๐๐ต๐ผ๐ ๐ ๐๐๐ถ๐ฐ ๐ฉ๐ถ๐ฑ๐ฒ๐ผ ๐ฏ๐ ๐ฅ๐๐ฆ๐ฆ ๐ณ๐ฎ๐บ๐ถ๐น๐ถ๐ฒ๐ Covid-19 restrictions on video shoots did not stop us from
On 29 February 2020, RDSS launch a new campaign called Carry Hope Run. The objectives of this campaign are to
Pharmaceutical group Boehringer Ingelheim (BI) has donated its second tranche of Jobs Support Scheme (JSS) payouts to seven charities, with
RDSS organised our first FB live to find out how our beneficiaries are coping with the Covid pandemic. With COVID-19
Every 2 years RDSS will host a year end party to celebrate with our beneficiaries and their families of a
Press Release by MOH: The Ministry of Health (MOH) and the SingHealth Fund have jointly established the Rare Disease Fund
On 9th June 2019, RDSS hosted it's very first Sibling's Friendship Day 2019 at HomeTeamNS Laser Quest Centre. 27 children
Close to 200 guests witnessed the Launch of โBless Our Cityโ Grant Programme at Far East Plaza Concourse on 13
iROO will mark latest venture at Jewel Changi Airport by reuniting with Rare Disorders Society Singapore (RDSS) to raise funds
In October 2018, Art For Good designed and facilitated a team bonding activity for MOE PSB where they produced 11
'Love Is Not Rare' is the tagline of the Rare Disorders Society Singapore (RDSS). While our children's conditions are rare,
Together with Singapore Port Workers Union (SPWU) and Port Officersโ Union (POU), they will be blessing RDSS beneficiaries with a