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Rare Disease Fund
03/07/2019Press Release by MOH: The Ministry of Health (MOH) and the SingHealth Fund have jointly established the Rare Disease Fund (RDF), a charity fund that combines community donations and government matching contribution to support Singapore Citizens with specific rare diseases who require treatment with high-cost medicines. Rare Diseases 2. Rare diseases are conditions that […]
Posted In: Our News -
RDSS Sibling’s Friendship Day 2019
12/06/2019On 9th June 2019, RDSS hosted it’s very first Sibling’s Friendship Day 2019 at HomeTeamNS Laser Quest Centre. 27 children aged between 7 to 16 attended the event this time. During the event, the children also participated in an art therapy session leaded by Ms Amanda from Art For Good. This event was organised by […]
Posted In: Our News -
Bless Our City Grant Programme
14/05/2019Close to 200 guests witnessed the Launch of “Bless Our City” Grant Programme at Far East Plaza Concourse on 13 May 2019. RDSS was invited to perform our song “Love Is Not Rare” to the guests at the lauch of the the event. It was a heart-warming experience for everyone present to kick-off the “Bless […]
Posted In: Our News
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01/03/2014Rare Disease Day 2014
This is the 3rd year Singapore celebrating Rare Disease Day 2014. Come join us to show your support for children living with rare diseases.
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18/05/2014Cold Storage Run 2014
Join us on 18th May 2014 to support children running for RDSS. We need volunteers to help give out flyers and share about RDSS.
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22/06/2014Income & wealth accumulation workshop
“How to invest in Reits and ETF for income and wealth accumulation” workshop will be held soon. Date: 22/06/14, Time: 1pm-6pm, Place: 100A Eu Tong Sen Street #04-11 Pearls Centre Office Podium Singapore 059813
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27/07/2014WOW Day Tea Party 2014
A group of 26 individuals coming together as LP125 to give, love and serve the families of Rare Disorder Society (Singapore)
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21/11/2014RDSS Family Retreat 2014 – Nautical Fantasy
RDSS family retreat – Nautical Fantasy will be a 4D3N trip to Port Klang on board Royal Caribbean’s Mariner of the Seas cruise ship from 21 to 24 November 2014.
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03/01/2015RDSS Educational Programme 2015 – Ocean Dreams
On 3rd January 2015, 27 families will be participating in RDSS Educational Programme at S.E.A Aquarium
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28/02/2015Rare Disease Day 2015
RDSS is celebrating Rare Disease Day 2015 on 28/02/215 at Bishan Active Park.
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12/03/2015Rare Disease Asia Conference 2015
Save the date – 12th March 2015
Don’t miss the first Rare Disease Asia Conference 2015 in Singapore. -
27/06/2015RDSS Dinner & Durians Party
During June’s holiday, RDSS is organising a networking party for RDSS families on 27th June 2015. We have 19 families signing up to attend this party and we hope everyone will enjoy themselves.
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23/11/2015Colour For Courage Party
On 22th November, a volunteer group called Colour Fighters is organising a lunch party for RDSS beneficiaries. During the event, there will be an award presentation to this year’s caregiver award recipients.
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26/12/2015Christmas is Christmas Party
RDSS would like to thank donors and sponsors for this year Christmas Party. More than 60 families attending this party on 26th December at Orchard Hotel.
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27/02/2016Care Connection medical seminar “Managing Rare Genetic Disorders”
CLUB RAINBOW (SINGAPORE) presents a new initiative under Care Connection SEMINAR ON “MANAGING RARE GENETIC DISORDERS” ABOUT THE WORKSHOP Critical information on rare genetic disorders Symptoms and distress signals Options to treat/control illness and other life-saving alternatives Monitoring and home-administered methods to improve conditions This seminar is open to all caregivers and families, and members […]
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28/02/2016Rare Disease Day 2016 “Together in One Voice”
RDSS is hosting a closed door event to mark this year’s Rare Disease Day 2016.
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17/06/2016RDSS Mummies’ Respite event
An Evening of Art, Wine and Friendship – An RDSS Mummies’ Respite event Date: 17 June 2016 Time: 7pm – 9:30pm A: 200 Jalan Sultan, #09-03 Textile Centre, Singapore 199018 Programme: Create art, paint, while sipping a glass of wine and enjoy light refreshments together with fellow mummies for a night of much deserved respite. […]
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25/02/2017Fundraiser by igKNIGHT
Date: 25th February 2017, Saturday Time: 1630 – 1800 (doors will open promptly at 1600) Venue: The Republic Cultural Centre Studio, Level 2 Republic Polytechnic, 9 Woodlands Avenue 9, Singapore 738964 Acts include: 1. Performance by RDSS in memory of Teo Peishan ? 2. Defenestration – Year 4 SN Dancers ? 3. Nicole Lim & […]
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26/02/2017Rare Disease Day 2017
Rare Disease Day 2017: Balik Kampung – Back to basics Date: 26 Feb 2017 Time: 9.30am – 12.30pm Location: Enabling Village, Hall 1 & 2, 20 Lengkok Bahru, Singapore 159053 Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness among […]
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17/03/2019‘Racefor 7’ 2019 Charity Run
‘Race for 7’ 2019 is organised by Rare Disorders Society (Singapore) to help raise funds and awareness for rare disease patients in Singapore.
