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About us
We live with a hope
May people with rare disorders live with a hope that one day, a cure or treatment will be found for their condition. Until then, they need to live a quality life while waiting for that to happen.
Over in RDSS, we try our best to keep that hope in them alive. Our collaboration with multi-stakeholders will ensure RD patients do not fall within the crack of our healthcare system.
Please lend us your voice so that we can be heard!
Active Campaigns
Some Good Causes
Get Started Today
Our Fundraising
“Hope”, our dear sloth mascot represents the many dreams and wishes that our beneficiaries with a rare condition have.
Carrying “Hope” is akin to carrying their hopes with us, and showing our support for these patients. Run with “Hope” for the beneficiaries in the Rare Disorders Society (Singapore).
During Covid-19 pandemic, our beneficiaries will need more support from you.
Financial Support
Emotional Support
Informational Support
Psychosocial Support
Testimonial
About Our Work
Meet Patricia & Kenneth
RDSS is a family-style non-profit organisation. We build RDSS to serves as a community, another family, where people living with rare disorders, and their family can come together for companionship and support. RDSS offers a platform for caregivers to share their experiences and network with each other.
Meet Jasmine & Sarah
RDSS is more than just a place I have received support and assistance from, but also one that empowered me to become a better caregiver. Each of us is like a family to one another, because we can understand the challenges and also the joy that come with every victory that our child has battled. Love is not Rare and we are not alone in this journey.
Meet Amanda & Amelia
As a sibling, there are many things we have to learn beyond our age. RDSS siblings programme showed me that there are many other siblings out there who is facing the same struggles as me and its been an honour to journey alongside with them. So now it's my turn to contribute back and RDSS has provided me a platform to do so.
Meet Francesca
Thank you RDSS for letting me have my art therapy with Art for Good. I like teacher Amanda very much and I hope to continue my lessons with her. I never know I can draw so well and I am so happy that I can express myself through my drawing. My daddy and mummy are very proud of me! When I grow up, I want to become an artist!
Latest News
Some of the Recent Stories
𝗦𝗽𝗲𝗰𝗶𝗮𝗹 𝗖𝗵𝗶𝗹𝗱 - 𝗮 𝘀𝗲𝗹𝗳-𝘀𝗵𝗼𝘁 𝗠𝘂𝘀𝗶𝗰 𝗩𝗶𝗱𝗲𝗼 𝗯𝘆 𝗥𝗗𝗦𝗦 𝗳𝗮𝗺𝗶𝗹𝗶𝗲𝘀 Covid-19 restrictions on video shoots did not stop us from
On 29 February 2020, RDSS launch a new campaign called Carry Hope Run. The objectives of this campaign are to
Pharmaceutical group Boehringer Ingelheim (BI) has donated its second tranche of Jobs Support Scheme (JSS) payouts to seven charities, with
RDSS organised our first FB live to find out how our beneficiaries are coping with the Covid pandemic. With COVID-19
Every 2 years RDSS will host a year end party to celebrate with our beneficiaries and their families of a
Press Release by MOH: The Ministry of Health (MOH) and the SingHealth Fund have jointly established the Rare Disease Fund
On 9th June 2019, RDSS hosted it's very first Sibling's Friendship Day 2019 at HomeTeamNS Laser Quest Centre. 27 children
Close to 200 guests witnessed the Launch of “Bless Our City” Grant Programme at Far East Plaza Concourse on 13
iROO will mark latest venture at Jewel Changi Airport by reuniting with Rare Disorders Society Singapore (RDSS) to raise funds
In October 2018, Art For Good designed and facilitated a team bonding activity for MOE PSB where they produced 11
'Love Is Not Rare' is the tagline of the Rare Disorders Society Singapore (RDSS). While our children's conditions are rare,
Together with Singapore Port Workers Union (SPWU) and Port Officers’ Union (POU), they will be blessing RDSS beneficiaries with a
Chloe Mah's treatment for a rare genetic condition that affects her muscles costs S$40,000 a month before subsidies kick in.
Thank you @thevagabondclub and @uncanned.art for organising unique - an art exhibition silent auction fundraiser for RDSS (Rare Disorders Society
On 28 February 2018, iROO Singapore has officially launched their 5 years Corporate and Social Responsibility Campaign with Rare Disorders
In honor of and Rare Disease Day on February 28th, Illumina participated in a global company wide fundraising initiative to
RDSS hosted it annual party in December and this year the theme is "Celebrating Life and Love". We have more
RDSS is honoured to be the adopted charity for this year's Mrs Signapore World . Marking it's 19th year, the
RDSS families were invited to a "Nice to meet you" dinner at Hajime Tonkatsu & Ramen which is located at