Some public and private resources in Singapore that offer emotional, medical, financial and educational support to rare disease patients and their families are listed here.
RDSS will continue to make updates on the section to provide useful resources for the parents and caregivers.
Rare Disorders Society Singapore (RDSS)
RDSS is devoted to improving the life of families and patients with rare diseases by raising public awareness on rare diseases, organising parent support group sessions, providing financial support on sustainable treatment methods, and participating in rare diseases conferences.
Get a copy of Rare Disorders Patient Handbook here.
Serving People with Disabilities
Serving People with Disabilities provides day care, social service support, rehabilitation, education, and employment training for people with special needs.
Asian Women’s Welfare Association (AWWA)
AWWA provides community-based programmes for people with special needs across all ages. The AWWA Centre for Caregivers runs mentoring programmes as well as counselling sessions for caregivers.
Muscular Dystrophy Association Singapore
MDAS (Muscular Dystrophy Association (Singapore)) was founded in 2000 to provide care and support to people with Muscular Dystrophy (MD) in Singapore. They are committed to providing health and public education on MD as well as supporting medical research.
CRS helps more than 1,000 families and offers a vibrant array of free services. This includes personalised counselling, group sharing sessions, social activities, tuition and financial assistance when necessary. In January 2007, Club Rainbow established its first purpose-built facility – Rainbow Family Care Centre. This serves as the focal point of our many services and activities. It has two other branches located in the KK Women’s and Children’s Hospital and in the National University Hospital.
Today, Club Rainbow (Singapore) takes on a holistic approach to conduct numerous events and programmes for our beneficiaries; ensuring psychosocial, financial, educational, informational and social support.
Haemophilia Society of Singapore
The Haemophilia Society of Singapore (HSS) is a registered charitable organisation seeking to empower haemophilliacs to lead normal and productive lives.
MS Care by City Harvest Church
YWCA Of Singapore
List of Hospital in Singapore
KK Women’s and Children’s Hospital
The NENS Laboratory provides screening for genetic defects causing metabolic disorders in babies born in Singapore.
The multidisciplinary team at Psychological Medicine may help meet the emotional needs of your child.
The Health Services Authority Clinical Trials Register
You can find a list of all the active clinical trials in Singapore in this register.
Fabry and Gaucher Symptoms Matcher
If you are suspected to having Fabry or Gaucher Disease, you may use the following link to find out more.
Collaborative Care Notebook from Utah Family Voices
You may use this care notebook as a template to keep track of your child’s medical conditions.
Assistive Device Loan Library
This library allows people with disabilities to rent devices and offers case-by-case subsidies.
Special Education Financial Assistance Scheme
Offered by the Ministry of Education, the scheme provides a full waiver on school fees, textbooks and school uniform for special education students.
Rare Disorders Society (Singapore) Fund
The fund offers financial assistance through the Medical Intervention Support Programme, the Power For Life Programme, and the Consumable Support Scheme.
Private Intervention Subsidies
These subsidised private intervention programmes help children with disabilities develop their communication, physical and intellectual skills.
Caregivers Training Grant
This grant provides an annual caregiving training subsidy of SGD 200.
Make A Wish
Services for Children with Special Needs
These early intervention programmes and support services include Early Intervention Programme for Infants and Children, the Integrated Child Care Programme, and Development Support & Learning Support Programme.
List of Public Special Education Schools
List of Private Special Education Schools
Beautiful Mind Charity
Beautiful Mind Charity provides musical training for children with disabilities and organises mini-concerts at schools, nursing homes and hospitals.
Enabling Guide : First-stop resource for persons with disabilities and their caregivers
The Enabling Guide is for anyone looking for information and advice on schemes, services, supports and resources related to disability in Singapore. The Enabling Guide is for persons with disabilities, and their caregivers, friends, and support team. It is also for community leaders, educators, healthcare providers and employers wondering how they can better support their constituents, students, patients and employees with disabilities.