Rare Disease Fund

Press Release by MOH: The Ministry of Health (MOH) and the SingHealth Fund have jointly established the Rare Disease Fund (RDF), a charity fund that combines community donations and government matching contribution to support Singapore Citizens with specific rare diseases who require treatment with high-cost medicines. Rare Diseases 2.   Rare diseases are conditions that […]

CONTINUE READING

RDSS Sibling’s Friendship Day 2019

On 9th June 2019, RDSS hosted it’s very first Sibling’s Friendship Day 2019 at HomeTeamNS Laser Quest Centre. 27 children aged between 7 to 16 attended the event this time. During the event, the children also participated in an art therapy session leaded by Ms Amanda from Art For Good. This event was organised by […]

CONTINUE READING

Bless Our City Grant Programme

Close to 200 guests witnessed the Launch of “Bless Our City” Grant Programme at Far East Plaza Concourse on 13 May 2019. RDSS was invited to perform our song “Love Is Not Rare” to the guests at the lauch of the the event. It was a heart-warming experience for everyone present to kick-off the “Bless […]

CONTINUE READING

iROO giving back to Society

iROO will mark latest venture at Jewel Changi Airport by reuniting with Rare Disorders Society Singapore (RDSS) to raise funds and awareness through fundraising campaign. Taiwanese fashion label iROO International Pte Ltd is pleased to announce the launch of its latest outlet at the newly opened Jewel Changi Airport with sales of limited-edition merchandise to […]

CONTINUE READING

Racefor 7

Race For 7 Singapore, is Rare Disorders Society Singapore (RDSS) Inaugural Run. The event took place on 17 March 2019 with special guest appearances of Ms Anthea Ong and Mr Joe Augustine. ‘Race for 7’ 2019 is organised by Rare Disorders Society (Singapore) to help raise funds and awareness for rare disease patients in Singapore. […]

CONTINUE READING

MOE PSB Teddy Bear

In October 2018, Art For Good designed and facilitated a team bonding activity for MOE PSB where they produced 11 handmade bears as Christmas presents for the children with rare disorders from Rare Disorders Society (Singapore).  RDSS is also the charity partner where Art For Good providing clinical art therapy to our beneficiaries. For the […]

CONTINUE READING

RDSS ‘Love Is Not Rare’ Music Video

‘Love Is Not Rare’ is the tagline of the Rare Disorders Society Singapore (RDSS). While our children’s conditions are rare, our love for them isn’t rare. It is in everything we do. The daily heavy-lifting. The medical procedures we carry out regularly that may cause our child discomfort. The many nights we camp by their […]

CONTINUE READING

Ucare’s May Day 2018 project

Together with Singapore Port Workers Union (SPWU) and Port Officers’ Union (POU), they will be blessing RDSS beneficiaries with a goodie box which will be kindly delivered by volunteers right to their door step! On behalf of all RDSS beneficiaries and families, we give our deepest appreciation to SPWU and POU for always having us […]

CONTINUE READING
Change this in Theme Options
Change this in Theme Options